Other site of interest

Contact a Family is a UK charity for families with disabled children. They  offer information on specific conditions and rare disorders.  They have an excellent page on how to apply for benefits such as Disability Allowance.

The British Society for Human Genetics has an interesting web site that explains how genetic counselling can be obtained and how it may help you.

The Genetic Interest Group ( GIG ) is an organisation of which the PCD support group is a member.

If you have Karteneger's syndrome or dextrocardia we would recommend that you wear a bracelet or necklace to explain your medical condition. They are available from Medicalert.

Henleys Medical Supplies provide the Acapella physiotherapy aid which you may like to discuss using with your physiotherapist.