PRIMARY CILIARY DYSKINESIA (P.C.D.)

FAMILY SUPPORT GROUP (U.K.)

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What is PCD?

Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with an abnormality of cilia, which may affect the lungs, sinuses and ears. If left untreated can lead to a form of lung damage know as bronchiectasis. The mainstay of treatment is chest physiotherapy and targeted antibiotics which enables individuals to lead normal lives. Any problems resulting from PCD vary from person to person.

About the Group

The group was formed in 1991 to:-

  • Provide support to adults with P.C.D. and parents of children known to have the condition

  • Bring P.C.D. to the attention of the medical profession and the public

  • Provide an up to date information service

This web site offers information about P.C.D., information about current research into the condition and links to other pages of interest across the Internet.

We would be very grateful for any feedback. Why not give your opinion, have you any questions? Go to our

P.C.D. Discussion Board

If you know of any other web pages that might be of interest please let us know.

E-mail us

Disclaimer

 

 

April 2008

Dates for your diary - the next PCD Family Day will be held on Saturday, 14 June 2008. Venue and speakers to be confirmed at a later date.

Sponsored Walk - 24 miles from Richmond to Greenwich . Saturday 3rd May 2008

 

 

 

 

 

Last Update 1 April2008